Living with Spina Bifida: A Guide for Families and Professionals

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By on Apr 29, Wonderful book for teachers who have children with Spina Bifida in their classrooms. Add a Book Review. Author: Adrian Sandler.

Publisher: University of North Carolina Press. Weight: 1. Product Description.

Useful, but maybe a little bit dated. Five Stars. This particular edition is in a Paperback format.

It was published by University of North Carolina Press and has a total of pages in the book. To buy this book at the lowest price, Click Here. What Can You Do? Best Sellers.

Spina Bifida and Spinal Cord Conditions Center - Boston Children's Hospital

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Living with Spina Bifida

Description Table of Contents eBook Details Click on the cover image above to read some pages of this book! A holistic overview of spina bifida -- Neural tube defects -- Epidemiology of spina bifida -- Pregnancy and childbirth -- The newborn baby -- Infants and toddlers -- Preschoolers -- The school-age child -- The adolescent and young adult -- Focus on the family -- Focus on education and work. Manage Your Pain 3rd Edition. Unblemished Stop Breakouts!

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Although most adults with SB are fertile and can produce children, men may have difficulty achieving erection and orgasm due to poor sensation in the lower limbs. Therefore, they may take medications or receive other medical care for erectile dysfunction.

A Guide for Families and Professionals

People with SB often require physical therapy PT or occupational therapy OT services, which may be covered by healthcare plans. The young individual with SB may require neuropsychology assessments periodically. If the student is fortunate enough to attend college the learning disability needs to be documented within 3 years. Many health plans pay for the initial diagnostic assessment only. The ongoing therapies and devices are complex and vary across the lifespan.

A Guide for Medical Professionals - Spina Bifida Association

What other services and supports, which are not generally medically arranged therapies and devices, are typically required by persons with SB? Are these arranged and financed in some private health insurance plans or in some Medicaid programs? Because of poor sensation and lower limb paralysis, they are at high risk for skin breakdown and need to assess their skin each day for areas of redness or changes in appearance or temperature.

They need to avoid the following: prolonged rubbing, pressure, friction, shearing, wetness, burns and blistering, poorly fitting clothes, sitting too long or sitting too long in one position. Wheelchairs are usually covered for replacement every 3 years in a growing child.

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Are there any other unique medical needs that someone with SB should consider when evaluating a health plan? People with SB require a health plan that allows them to receive multi professional care on a regular basis throughout life. Although many will work, they will require numerous surgeries orthopedic, urologic, neurosurgical beginning at birth and throughout life.

They will also require durable medical equipment, catheters, and are at very high risk for having allergic reactions to products that contain latex; so they should not be exposed to latex in the home, school, work or medical environment. They will ambulate with walker or crutches, or use a manual or motorized wheelchair.